We are holding a sponsored circuit session on Tues 4th November in memory of Rebecca “BEX” Snowden.
Rebecca died at the age of 4 on September 19th 2008 from a rare disease called Cockayne Syndrome.
Bex is the niece of one of our gym members Carl Murray and daughter of Dave & Yvonne Snowden.
Rebecca died at the age of 4 on September 19th 2008 from a rare disease called Cockayne Syndrome.
Bex is the niece of one of our gym members Carl Murray and daughter of Dave & Yvonne Snowden.
The charity we are raising money for is called Amy & Friends.
The aim of the sponsored circuit is to raise money for the charity and raise awareness of this rare disease.
It will consist of 10 exercises, 3 minutes on each with no rest. I myself will be sparring for 2 hours! 2min rounds with 1min rests between, that’s 40 rounds!
Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan. CS is inherited in an autosomal recessive pattern. In order for a child to be affected by CS, he or she must inherit a mutation (-) in the same CS gene from both parents. The parents and other “carriers” of a single CS gene mutation remain healthy. Once a couple are known to carriers, they have a 1 in 4 (25%) chance of having another child with CS.
The symptoms of Cockayne syndrome vary significantly, especially with regard to their age of onset and rate of progression.
I would appreciate everyone’s help with this in raising awareness, and raising as much money as we can for this great cause. I would like to thank you in advance from all at the club as well as Bex family.
The aim of the sponsored circuit is to raise money for the charity and raise awareness of this rare disease.
It will consist of 10 exercises, 3 minutes on each with no rest. I myself will be sparring for 2 hours! 2min rounds with 1min rests between, that’s 40 rounds!
Cockayne Syndrome (CS) is a rare genetic disorder characterized by poor growth, microcephaly, progeria (premature aging), sensitivity to sunlight, moderate to profound developmental and neurological delays, and a shortened lifespan. CS is inherited in an autosomal recessive pattern. In order for a child to be affected by CS, he or she must inherit a mutation (-) in the same CS gene from both parents. The parents and other “carriers” of a single CS gene mutation remain healthy. Once a couple are known to carriers, they have a 1 in 4 (25%) chance of having another child with CS.
The symptoms of Cockayne syndrome vary significantly, especially with regard to their age of onset and rate of progression.
I would appreciate everyone’s help with this in raising awareness, and raising as much money as we can for this great cause. I would like to thank you in advance from all at the club as well as Bex family.
Anyone outside the club who wishes to take part or make a donation please contact us.
The money raised will help other familys live a better quality life and help to fund finding a cure as well as helping with the costs of medicine for these familys.
All who participate will recieve a personalised certificate from the club with the amount they raised.
A message from Dave:
A message from Dave:
Cockayne syndrome is very rare and only found in 1:500:000 people, I am reaching out for help if not to cure this syndrome then to make people aware and understand, and if possible help other children and families live a happy fulfilled life.Thank you all so much for your help
Dave (Bex daddy)
Dave (Bex daddy)
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